”“A diagnosis can’t predict the extraordinary love you will have for your child.”
Tara McCallan
“The mission of the Maine Chapter of the American Academy of Pediatrics is to improve the lives of children and adolescents in Maine. Our vision is to be the leading authority, advocate, and voice for the health of Maine’s children and for the profession of pediatrics.”
Newborn screening can detect a range of birth defects in your child with just a few drops of blood taken from your child’s heel, 24-48 hours after birth.
“By law, all newborns are tested for several rare but serious medical conditions. Babies with these conditions may look healthy at birth. If not treated, these conditions can cause health problems such as mental retardation, slow growth, and even death. With treatment, these problems may be prevented.”
“For over 75 years, the Federal Title V Maternal and Child Health Program has provided States with funding to ensuring the health of the Nation’s mothers, women, children and youth, including children with special health care needs, and their families.”
Described as an intermediate educational unit, the Child Development Services system provides both early intervention (birth to 2 years), and Free Appropriate Public Education (ages 3-5).
The Office of Special Services is responsible for the state’s oversight and support for the delivery of all special education services provided in Maine under the federal Individuals with Disabilities Education Act (IDEA). This includes early intervention services to eligible children age birth to under age three and their families, provided under IDEA, Part C, and Free Appropriate Public Education to eligible children age three to 20, provided under IDEA, Part B. The Office of Special Services is also responsible for meeting the state’s responsibilities under IDEA
This resource provides a lot of information on what Autism Spectrum Disorder is, as well as connecting parents and youth to events and support groups throughout Maine. The Autism Society of Maine is known for getting people involved with their annual “Walk for Autism”.
“The Autism Society of Maine provides education and resources to support the valued lives of individuals on the autism spectrum and their families.”
Through parent-to-parent sharing of experiences and knowledge, G.E.A.R. Parent Network empowers parents of children with behavioral health needs to build on their family’s strengths and to advocate for their family’s needs.
“Through support, education and advocacy NAMI Maine is dedicated to building better lives for the one in four Mainers who are affected by mental illness.”
“Maine Quality Counts is transforming health and health care in Maine by leading, collaborating and aligning improvement efforts”
“Through the active engagement and alignment of people, communities and health care partners, every person in Maine will enjoy the best of health and have access to patient centered care that is uniformly high quality, equitable and efficient”
“NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 260 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.”
“CDC’s National Center on Birth Defects and Developmental Disabilities (NCBDDD) is working toward a day when all babies are born with the best health possible. “
The mission of NCBDDD is to: save babies by studying and addressing the causes of birth defects; help children reach their potential by understanding developmental disabilities; reduce complications of blood disorders; and improve the health of people living with disabilities.
“If you’re looking for information you can trust about kids and teens that’s free of “doctor speak,” you’ve come to the right place. KidsHealth is the most-visited site on the Web for information about health, behavior, and development from before birth through the teen years.”
“The mission of SPARK — an online research partnership involving 50,000 individuals with autism and their families — is simple. We want to speed up research and advance understanding of autism.
Help us spark better futures for all individuals and families affected by autism.”
“Vision – All individuals with genetic conditions in New England have the opportunity to achieve their fullest potential.
Objectives
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