Maine Parent Federation is Maine’s federally funded F2F Health Information Network grant. This program builds upon and strengthens the partnership between the Maine Parent Federation (MPF) and Maine’s Maternal and Child Health Title V Children with Heath Special Health Care Needs Program.
The goal of the program is to assure that Maine’s families of children with special health care needs partner in decision-making at all levels and are satisfied with the services they receive. In addition, families also receive a wide variety of information, education, referral, training, advocacy and a range of family supports.
Central to success is the nationally acclaimed parent-to-parent support model. Under the model a volunteer cadre of specially trained parents (who also have children with special health care needs) having the gifts of empathy and common experience help other parents walk through the multiple challenges of accessing care and supports. Centers also provide information, education, referral, training, advocacy and a range of family supports.
Project Goals Are:
1. Families will have access to resources, information, and training which is culturally competent and delivered in a family-friendly manner when navigating systems of care for children and youth with special health care needs;
2. Stronger partnership will be established between providers and families;
3. Families and youth will have affordable, appropriate healthcare (including medical homes) to meet their needs;
4. Youth and young adults will receive support and information to effectively transition to adult life;
5. Families will have a strong system of parent-to-parent support.
